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Sunday, 12 May 2024

₹17.5 Crores required to save child’s life, many come forward to save Kanav’s Life

Ludhiana, April 21 : NGOs Krishna Pran Breast Cancer Charitable Trust and Samvedna Trust have launched “Let's Save Kanav - Help Before It's Too Late” Campaign to save the life of 14 months old Kanav hailing from Delhi.

The campaign has been launched to help raise funds for Kanav Jangra's treatment for a rare Genetic disease SMA (Spinal Muscular Atrophy) Type 1. This is a genetic disease that destroys the nerves responsible for controlling most of our body movements. Kanav is currently undergoing treatment for this debilitating condition. Dr Shefali Gulati (AIIMS New Delhi) and Dr Ratna Dua Puri (Sir Ganga Ram Hospital) are treating Kanav. The only one-time treatment of this disease is a gene therapy called ZolgenSMA which costs Rs.17.50 crore (2.1 million USD). Novartis, a Swiss company, manufactures the required injection.


Kanav’s parents- Amit and Garima, belong to a lower middle-class family and they cannot afford such costly treatment. They are seeking generous help to save their son's life. “Since the Kanav’s family is a middle class one and cannot afford a huge expenditure on treatment of their son, as such people are requested to consider the appeal for donation on humanitarian grounds and donate open heartedly to save a precious life”, said AAP’s MP (Rajya Sabha) from Ludhiana Sanjeev Arora who runs Krishna Pran Breast Cancer Charitable Trust.


Giving more details here today, Arora said that Rs.7 Crores have already been raised and Rs.10.5 crores are left to save Kanav’s life. He added donation qualifies for CSR and if for any reason the treatment cannot be done then they will refund the donated money.


Member Parliaments (MPs) Raghav Chadha, Hans Raj Hans, Sanjay Singh, Vivek Tankha, Sanjeev Arora, Ramchander Jangra, Priyanka Chaturvedi, Ravneet Singh Bittu, Sant Balbir Singh Seechewal, Pravesh Verma, Ashok Mittal and Manish Tewari are contributing for Kanav's cause.


Besides MPs, many celebrities are also supporting Kanav's cause. These celebrities are: Sonu Sood, Farha Khan, Vidya Balan, Chunkey Pandey, Rajpal Yadav, Vishal Dadlani, Kapil Sharma, Ali Asgar, Bharti Singh, Pankaj Tripathi, Shakti Kapoor and Kiku Sharda.


BANK DETAILS FOR MAKING DONATIONS:
(Transfers to this account number would be allowed from Banks in India only)
• Bank Name: RBL Bank
• Account number. 2223330078969258
• Account name: Kanav Jangra
• IFSC code: RATNOVAAPIS
• (The digit after N is Zero)
• For UPI Transaction: assist.kanav11@icici 

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